People are always asking about Beatrice’s nose when we see them, so I figured I should probably update all of you on it as well. Everything is going just swell. Her doctor is very pleased with the results. The deep hemangioma is nearly completely gone and the superficial one is certainly fading and getting lighter. Since we were mostly concerned about the damage the deep hemangioma could do to the shape of her nose, things are great! You can definitely see a big difference in her nose, and nearly everyone seems to notice the change.
She still gets the propranolol three times a day, currently at 7:30 am, 3:30 pm, and 11:30 pm. We shifted the time slightly to best accomodate us. I usually don’t have to wake her up in the morning to give her the medicine, which is great, since I usually have to wake her at the other two times. Medicine administration is still a challenge as she likes to spit it out. Some times it goes well and she doesn’t spit any out, and other times it is a total diaster. I think most of the times we do a pretty good job. It is actually easiest to give to her in the middle of the night. I barely wake her, squirt it in, she swallows and drifts back to sleep. Beatrice is supposed to eat either before or after taking her medicine so that her blood sugars don’t drop and most of the time that isn’t a problem. But, there are times when I definitely struggle to get her to nurse. It happens most often if we are out and about and she wants to see what is going on, not stop and nurse.
Hopefully at her next visit, we will get to go down to 2 doses a day, but you never know. Since she would then be on less overall medicine per day, the doctor wants to make sure she is happy with the progress before lowering the dose. Here is a before and a current picture (about 7 weeks after starting propranolol).