nose

I haven’t mentioned all that much about Beatrice’s nose, mainly because I’m very far behind on this whole updating the blog thing. The growth grew pretty fast for a month or two and now has mostly stopped. Anyways, today we had our appointment with the pediatric dermatologist.

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Beatrice has a mixed hemangioma. Basically there are two types, superficial and deep, hers happens to be both. The superficial is above the skin and mostly what you see. If you look closely you can see some kind of bruise (purple-blue colored) looking stuff underneath and next to the superficial, that is the deep hemangioma. While the superficial part has likely stopped growing (or at least stopped growing so fast), the deep part may continue to grow for a little while longer. If it does continue to grow, it could cause cartilage damage in her nose and make her nose quite deformed. Also, depending on if the superficial part is done growing or not, when it does decrease in size it could leave behind some saggy skin.

The doctor recommends starting her on a drug called propranolol, which has been around a LONG time, like 50 years. It was created to treat high blood pressure and only in the last few years has it been used to treat hemangiomas. Since there are risks of low blood pressure and low blood sugar on this drug, Beatrice will have to be admitted to the hospital (CHOP) for 3-4 days while they put her on the medicine and adjust it to the correct dosage. They want her in the hospital to monitor her heart rate, blood pressure and blood sugar. We will then have to give her the medicine orally every eight hours with food (or milk, until there is food to give her) for a while. Eventually we will be able to give it to her every 12 hours. She will likely be on the medicine until she is somewhere between a year to a year and a half.

This hospitalization will likely happen soon, possibly May 4, but we have to wait until the hospital talks to the insurance company and approves everything. I will stay at the hospital with her and Matt and the big girls will come visit often.

2 thoughts on “nose

  • April 23, 2012 at 6:44 pm
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    Oh no! I’m so sorry she’ll have to go into the hospital – that’s just no fun. I hope the whole thing goes quickly and without incident. Keep us posted on when it’ll be. I’ll be keeping you all in my prayers.

  • April 23, 2012 at 10:37 pm
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    You will all be fine I know. You and Matt are wonderful parents and baby B will be a champ….like all your beautiful girls! It will be ok and I know you can get through it. God Bless all of you. love y’all DD

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